Open datasets · 82
HDB-0001
MIMIC-IV
MIT Laboratory for Computational Physiology De-identified electronic health records from patients admitted to Beth Israel Deaconess Medical Center, covering ICU and emergency department stays from 2008 onward. The de facto standard dataset for clinical machine learning research, with vitals, labs, medications, procedures and linked clinical notes modules. HDB-0002eICU Collaborative Research Database
MIT LCP / Philips Healthcare Multi-center ICU database from the Philips eICU telehealth program, covering 200,000+ admissions across hospitals in the United States. Complements MIMIC with multi-center generalizability for critical care research. HDB-0003NHANES
CDC / National Center for Health Statistics The National Health and Nutrition Examination Survey combines interviews, physical examinations and laboratory tests on a representative sample of the US population, released in continuous two-year cycles since 1999. A workhorse dataset for epidemiology and public health research. HDB-0004SEER Cancer Registry
National Cancer Institute The Surveillance, Epidemiology, and End Results program collects cancer incidence, treatment and survival data from population-based registries covering roughly half of the US population. The reference source for US cancer statistics. HDB-0005UK Biobank
UK Biobank Ltd Deep genetic, imaging and health data from 500,000 UK participants, linked to national health records with ongoing follow-up. The most-used large-scale biobank in the world for genomic and precision-medicine research; access requires an approved application and access fee. HDB-0006All of Us Research Program
National Institutes of Health NIH's flagship precision-medicine cohort, enrolling a diverse US population with surveys, EHR data, genomics and wearable data. Researchers work in a cloud-based Researcher Workbench with tiered access levels. HDB-0007HCUP Databases
Agency for Healthcare Research and Quality The Healthcare Cost and Utilization Project family of databases (including the National Inpatient Sample) captures hospital inpatient, emergency and ambulatory encounters across the US. The standard source for hospital utilization, cost and outcomes research; datasets are purchased with a data use agreement. HDB-0008openFDA
US Food and Drug Administration Open APIs and bulk downloads for FDA regulatory data: drug adverse events (FAERS), drug labels, recalls, device reports and more. Free, well-documented JSON APIs that power pharmacovigilance and regulatory analytics tools. HDB-0009NPPES NPI Registry
Centers for Medicare & Medicaid Services The public registry of every US healthcare provider and organization with a National Provider Identifier, searchable via API and downloadable as monthly bulk files. The foundation layer for US provider directories and healthcare B2B data products. HDB-0010WHO Global Health Observatory
World Health Organization The WHO's repository of health indicators for its member states: mortality, disease burden, health systems, environmental health and more, with an open OData API. The starting point for cross-country health comparisons. HDB-0038Europe PMC
EMBL-EBI Open biomedical literature repository developed by EMBL-EBI containing 48+ million articles, preprints, books, and theses from global sources. Freely accessible to anyone worldwide with REST APIs and bulk download capabilities; supported by 35 international research funders as an ELIXIR core data resource. HDB-0040dbGaP (Database of Genotype and Phenotype)
National Center for Biotechnology Information (NCBI), National Institutes of Health dbGaP is a repository of genotype and phenotype data from human research studies, maintained by the National Center for Biotechnology Information (NCBI) at the National Institutes of Health. The database contains data from over 3,400 studies with over 8 million participants, with some data publicly available and other datasets requiring formal access authorization. HDB-0041Gene Expression Omnibus (GEO)
National Center for Biotechnology Information (NCBI), National Institutes of Health The Gene Expression Omnibus is a public repository for gene expression and epigenomics data from microarray and sequencing experiments, operated by NCBI. It houses over 292,000 studies and 8.6 million samples, which researchers can search, download, and analyze through web-based tools or programmatic interfaces. HDB-0042TCGA via NCI Genomic Data Commons
National Cancer Institute (NCI), National Institutes of Health The NCI Genomic Data Commons is a repository and analysis platform for cancer genomics data, including data from The Cancer Genome Atlas (TCGA), which characterized over 20,000 cancer samples across 33 cancer types. Data is accessed through the GDC web portal, API, or data transfer tools, with controlled-access datasets requiring authorization. HDB-0043gnomAD (Genome Aggregation Database)
Broad Institute, Collaborators The Genome Aggregation Database is a resource of aggregated exome and whole-genome sequencing data containing over 241 million genetic variants from over 141,000 diverse individuals, curated by the Broad Institute and collaborators. Summary data are freely available without restrictions through the gnomAD browser, cloud storage, and programmatic interfaces. HDB-0044IGSR / 1000 Genomes Project
European Molecular Biology Laboratory (EMBL), European Bioinformatics Institute The International Genome Sample Resource maintains human genetic variation data from the 1000 Genomes Project, including updated reference assemblies and new datasets, operated by EMBL-EBI. All data are openly accessible through the IGSR portal with searchable filtering tools for accessing samples by population and sequencing method. HDB-0045ClinVar
National Center for Biotechnology Information (NCBI), National Institutes of Health ClinVar is a public archive of human genetic variants and their clinical significance, maintained by NCBI and aggregating submissions from over 3,400 submitters worldwide. Researchers can search, download, and programmatically access information about millions of variants and their relationships to diseases and drug responses. HDB-0046GTEx Portal
Broad Institute, National Institutes of Health The Genotype-Tissue Expression Portal provides tissue-specific gene expression and quantitative trait locus (QTL) data from 54 non-diseased tissue sites across approximately 1,000 individuals, maintained by the Broad Institute with NIH support. Data including raw RNA-seq reads, processed expression matrices, and QTL results are freely accessible through the portal's web interface and API. HDB-0047ArrayExpress (BioStudies)
European Molecular Biology Laboratory (EMBL), European Bioinformatics Institute ArrayExpress is a repository for functional genomics experiments including array and sequence-based studies, housed within the BioStudies database at EMBL-EBI. Researchers can browse, submit, and download experimental metadata, protocols, and data files through web interfaces or specialized tools like the Bioconductor package and Annotare submission system. HDB-0048The Cancer Imaging Archive (TCIA)
National Cancer Institute (NCI) TCIA is a service that de-identifies and hosts large archives of medical images of cancer accessible for public download. The archive contains cancer-related imaging collections organized by disease type, imaging modality, and research focus, supporting research in radiology image analysis. HDB-0049NIH ChestX-ray14
NIH Clinical Center NIH ChestX-ray14 is a publicly available dataset of 112,120 de-identified frontal-view chest radiographs from 30,805 patients, each labeled with 14 thoracic diseases via natural language processing of radiological reports. The dataset serves as a benchmark for developing and evaluating deep learning models for automated chest X-ray interpretation. HDB-0050CheXpert
Stanford ML Group CheXpert is a large dataset comprising 224,316 chest radiographs from 65,240 patients collected from Stanford Hospital, with labels for 14 clinical observations extracted from radiology reports. The dataset is designed for developing and benchmarking algorithms for automated chest radiograph interpretation. HDB-0051MIMIC-CXR
MIT Laboratory for Computational Physiology MIMIC-CXR is a publicly available dataset of 377,110 chest X-ray images in DICOM and JPEG formats corresponding to 227,835 radiographic studies from Beth Israel Deaconess Medical Center, each paired with free-text radiology reports. Access requires credentialing and completion of research training to comply with HIPAA privacy protections. HDB-0052ADNI (Alzheimer's Disease Neuroimaging Initiative)
National Institute on Aging (NIA) ADNI is a longitudinal, multi-center study of Alzheimer's disease featuring data from over 2,500 participants across the United States and Canada, including neuroimaging (MRI, PET), biomarkers, genetic data, and cognitive assessments. The initiative aims to develop and validate biomarkers for early detection and tracking of Alzheimer's disease progression. HDB-0053OASIS Brains
Washington University School of Medicine OASIS is a project providing four open-access collections of neuroimaging data from over 1,500 subjects spanning lifespan and disease states including normal aging and Alzheimer's disease. The datasets include multiple modalities (T1/T2-weighted MRI, FLAIR, PET) and longitudinal follow-up data from individual subjects. HDB-0054ISIC Archive
International Skin Imaging Collaboration The ISIC Archive is a large open-source repository containing approximately 549,571 dermatological images of skin lesions including melanomas, nevi, and other skin conditions, with clinical and histological metadata. The archive supports algorithm development for melanoma detection and dermatological diagnosis through curated datasets and annual machine learning challenges. HDB-0055OpenNeuro
Stanford Center for Reproducible Neuroscience OpenNeuro is a free, open-access repository for sharing human and non-human brain imaging data in standardized Brain Imaging Data Structure (BIDS) format, hosting over 600 datasets across multiple modalities including fMRI, structural MRI, EEG, MEG, and PET. Each dataset receives a persistent DOI and is released under Creative Commons CC0 license for maximum data reuse. HDB-0056CMS Data Portal
Centers for Medicare & Medicaid Services (CMS) The CMS Data Portal provides access to administrative claims data, enrollment records, and quality measures for over 160 million Americans covered by Medicare, Medicaid, CHIP, and the Health Insurance Marketplace. Data is available through Public Use Files (free, de-identified) and Research Identifiable Files (restricted access requiring formal application). HDB-0057CMS Open Payments
Centers for Medicare & Medicaid Services (CMS) Open Payments is a transparency program that tracks financial relationships between pharmaceutical, device, and medical supply manufacturers and physicians and hospitals. The database publishes annually on or by June 30 and includes general payments, research payments, and ownership or investment interests. HDB-0058HealthData.gov
U.S. Department of Health and Human Services (HHS) HealthData.gov is an HHS data portal providing thousands of downloadable health-related datasets from across HHS agencies including health indicators, healthcare quality metrics, inpatient data, and geographic health information. The platform includes a searchable catalog, analytics dashboards, data stories, and APIs for programmatic access. HDB-0059CDC WONDER
Centers for Disease Control and Prevention (CDC), National Center for Health Statistics (NCHS) CDC WONDER (Wide-ranging Online Data for Epidemiologic Research) is an online query system providing access to public health surveillance data including mortality, cancer incidence, HIV/AIDS, tuberculosis, vaccinations, births, and other disease and health event data. Users query county-level and state-level data through fill-in-the-blank web forms with dynamically calculated statistics, charts, and maps. HDB-0060BRFSS (Behavioral Risk Factor Surveillance System)
Centers for Disease Control and Prevention (CDC) BRFSS is a continuous telephone survey system conducted in all 50 states, DC, and three territories that collects state-level data on health-related risk behaviors, chronic health conditions, and preventive service use among U.S. adults. Data from over 400,000 annual interviews are made publicly available through the CDC website and CDC WONDER database. HDB-0061County Health Rankings & Roadmaps
University of Wisconsin Population Health Institute (UWPHI) in partnership with Robert Wood Johnson Foundation County Health Rankings & Roadmaps provides annual county-level health data for nearly every U.S. county measuring health outcomes and health factors including mortality, chronic disease, employment, food access, air and water quality, education, and lifestyle behaviors. Data is accessible through an interactive online portal organized by state and county with downloadable datasets and evidence-based improvement strategies. HDB-0062VAERS (Vaccine Adverse Event Reporting System)
Centers for Disease Control and Prevention (CDC) and Food and Drug Administration (FDA) VAERS is a post-licensure vaccine safety surveillance system jointly administered by CDC and FDA that collects and analyzes reports of adverse events following vaccination from healthcare providers, manufacturers, and the public. The system publishes data through downloadable datasets and an online search interface integrated with CDC WONDER for detecting unusual or unexpected patterns in adverse events. HDB-0063Medicare Part D Prescriber Data
Centers for Medicare & Medicaid Services (CMS) This CMS dataset contains the number of prescription fills and total drug costs paid organized by prescribing National Provider Identifier (NPI), drug brand name, and drug generic name for medications prescribed to Medicare Part D beneficiaries. The dataset is updated annually and is based on CMS administrative claims data from the Chronic Condition Data Warehouse. HDB-0064OECD Health Statistics
Organisation for Economic Co-operation and Development (OECD) OECD Health Statistics is a comprehensive database of health and health systems data maintained by the OECD, covering 35+ member countries. It provides comparable statistics on health expenditure, resources, services utilization, and key health indicators for policy analysis and research. HDB-0065Eurostat Health Database
Eurostat (European Commission) Eurostat's health database provides statistical information on health and health systems across EU member states and associated countries. It covers health expenditure, resources, activities, and services with data structured by topic and accessible through interactive tools and bulk download. HDB-0066IHME Global Health Data Exchange (GHDx)
Institute for Health Metrics and Evaluation (IHME) The Global Health Data Exchange (GHDx) is IHME's catalog of health and demographic data, including estimates from the Global Burden of Disease study assessing mortality and disability from diseases and injuries globally. Access requires free registration and is available for non-commercial use under IHME's free-of-charge agreement. HDB-0067Human Mortality Database
UC Berkeley & Max Planck Institute for Demographic Research The Human Mortality Database (HMD) is a joint project providing detailed harmonized mortality and population data for 41 developed countries and regions. Data is openly available under open data principles and can be downloaded as files or accessed through country-specific interfaces and Excel tables. HDB-0068The DHS Program
USAID / Avenir Health The DHS Program is a USAID-funded effort that conducts Demographic and Health Surveys across 90+ countries to collect data on population, health, and nutrition. Survey data is available free for academic research through the STATcompiler tool and downloadable datasets with free registration. HDB-0069Our World in Data - Health
University of Oxford (Oxford Martin Programme on Global Development) Our World in Data maintains a collection of global health datasets including life expectancy, disease burden, healthcare spending, and disease prevalence, drawn from WHO, World Bank, IHME, and UN agencies. Data is presented through interactive visualizations available under Creative Commons licensing. HDB-0070CBS StatLine Health
CBS (Centraal Bureau voor de Statistiek - Statistics Netherlands) CBS StatLine is the electronic database of Statistics Netherlands providing open access to official Dutch statistics on health and welfare topics. Users can create custom tables and download health data at no cost; microdata access requires authorization. HDB-0071Vektis Open Data
Vektis (Dutch healthcare information organization) Vektis manages healthcare cost data from the Dutch Health Insurance Act, providing aggregated open datasets on healthcare spending by service type at postal code and municipal levels. Data is freely downloadable as CSV files with annual updates covering 2011-2024. HDB-0080INDEPTH Network Health and Demographic Surveillance Systems (HDSS)
International Network for the Demographic Evaluation of Populations and Their Health (INDEPTH) INDEPTH operates 47 health and demographic surveillance system (HDSS) field sites across 19 countries in Africa, Asia, and Oceania, capturing longitudinal data on vital events and population health for over 3.8 million individuals. The network provides access to fully documented datasets through its data repository (data.indepth-network.org), enabling research on mortality, fertility, migration, and disease patterns in low- and middle-income countries. HDB-0081South Africa National Health Laboratory Service (NHLS)
National Health Laboratory Service The NHLS is a South African national public entity providing diagnostic pathology services and laboratory testing to over 80% of the South African population through a countrywide network of quality-assured laboratories. The organization operates LabTrack (a laboratory test tracking system) and maintains the National HIV Cohort, generating surveillance data on diagnostic patterns and HIV treatment outcomes across the country. HDB-0083African Population and Health Research Center (APHRC) Microdata Portal
African Population and Health Research Center APHRC's microdata portal provides access to 134+ documented datasets from research studies conducted across African countries, particularly Kenya, with detailed metadata on study design, sampling procedures, and data dictionaries. The portal hosts data from the Nairobi Urban Health and Demographic Surveillance System (NUHDSS) and numerous longitudinal studies on population, health, and education issues in sub-Saharan Africa. HDB-0084Human Heredity and Health in Africa (H3Africa)
H3Africa Consortium (NIH, Wellcome Trust, Science for Africa Foundation) H3Africa is a consortium-based initiative funded by the U.S. National Institutes of Health and the Wellcome Trust that conducts genomic research on the health determinants of common diseases across multiple African populations. The initiative manages 51 active research projects generating large-scale genomic and environmental data with documented governance through a Data and Biospecimen Access Committee. HDB-0085Africa CDC Health Knowledge Hub
Africa Centres for Disease Control and Prevention (Africa CDC) The Africa CDC Health Knowledge Hub serves as the central platform for disease surveillance, outbreak tracking, and health emergency data across the African continent under the African Union. The hub provides real-time disease outbreak information, health publications, and surveillance data integrated through Africa CDC's recently established Central Data Repository using a federated model. HDB-0087WHO AFRO Integrated African Health Observatory (iAHO)
World Health Organization Regional Office for Africa (WHO AFRO) The integrated African Health Observatory (iAHO) is the strategic health intelligence platform hosting health data, analytics, and evidence for the WHO African Region encompassing 47 Member States and their National Health Observatories. The platform marshals standardized health data, performs in-depth analysis, and disseminates key health information for policy dialogue and health decision-making. HDB-0088China Kadoorie Biobank
University of Oxford Clinical Trial Service Unit & Chinese Academy of Medical Sciences A prospective cohort biobank collecting blood samples, questionnaire data, and clinical information from over 510,000 Chinese adults aged 30-79 recruited between 2004-2008 from 10 regions. The resource enables investigation of genetic and environmental factors in chronic disease etiology through long-term follow-up and research collaborations. HDB-0089BioBank Japan
Institute of Medical Science, University of Tokyo A disease-focused biobank established in 2003 maintaining DNA and serum samples from approximately 270,000 patients with 51 targeted diseases, with whole genome sequencing available for over 16,000 participants. The resource supports personalized medicine research with findings published in major scientific journals. HDB-0091Korea National Health and Nutrition Examination Survey (KNHANES)
Korea Disease Control and Prevention Agency (KDCA) An annual national surveillance survey conducted since 1998 examining the health and nutritional status of approximately 10,000 representative Korean individuals. The survey collects data on socioeconomic factors, health behaviors, clinical/biochemical profiles, and dietary intake to inform national health policy development. HDB-0094China Health and Retirement Longitudinal Study (CHARLS)
Peking University National School of Development & Institute of Social Science Survey A nationally representative longitudinal survey tracking health, retirement, and socioeconomic data for Chinese residents aged 45 and older, with baseline sample of over 17,000 individuals from 150 counties. The biennial survey (baseline 2011-2012, latest Wave 5 in 2020) includes physical measurements, cognitive assessments, and biomarkers comparable to international aging cohorts. HDB-0096National Family Health Survey (NFHS)
International Institute for Population Sciences (IIPS), Ministry of Health and Family Welfare Large-scale multi-round national household survey conducted across India since 1992-93, providing data on fertility, mortality, family planning, maternal and child health, nutrition, and reproductive health. Data is publicly accessible through factsheets and datasets organized by survey round and state. HDB-0099Longitudinal Ageing Study in India (LASI)
International Institute for Population Sciences (IIPS), in collaboration with National Institute on Aging (USA) and Harvard School of Public Health India's first and largest longitudinal study of ageing, tracking over 73,000 adults aged 45 and older across all states and union territories to assess health, economic, social, and wellbeing dimensions. Wave 1 was conducted in 2017-18, with Wave 2 scheduled for 2024-25; data supports research on aging and policy development. HDB-0100Indonesian Family Life Survey (IFLS)
RAND Corporation Longitudinal household survey begun in 1993, representing 83 percent of Indonesia's population with detailed data on over 30,000 individuals across 13 provinces. Data covers consumption, income, assets, education, migration, labor, fertility, contraceptive use, health status, health insurance, and family relationships; researchers must register to access public-use data files. HDB-0101Health Information System Development Office (HISO) - Thailand Health Data Portal
Health Information System Development Office (HISO), Ministry of Public Health, Thailand Thailand's centralized health information and statistics portal that collects health data from domestic organizations including the Ministry of Public Health, National Statistical Office, National Health Security Office, and international agencies. Portal provides access to health indicators, statistics, reports, and visualization tools for trend analysis. HDB-0103Malaysia National Health and Morbidity Survey (NHMS)
Institute for Public Health (IKU), National Institutes of Health, Ministry of Health Malaysia Annual national cross-sectional household health survey conducted by Malaysia's Ministry of Health since 2011 to monitor population health status and health-related behaviors. Each annual survey focuses on specific health themes and provides state-level and national data to support health policy-making and service planning. HDB-0104Philippines National Demographic and Health Survey (NDHS)
Philippine Statistics Authority (PSA) in collaboration with DHS Program Nationally-representative survey conducted by the Philippine Statistics Authority (now every 3 years, previously every 5 years) as part of the global DHS program, tracking population dynamics, fertility, family planning, maternal and child health, nutrition, and health service utilization. The 2022 NDHS was the seventh DHS conducted in the Philippines since 1968. HDB-0106Qatar Precision Health Institute
Qatar Foundation The Qatar Precision Health Institute maintains large-scale genomic and biobank repositories of biological samples and health data from Qatari citizens and residents, including whole genome sequencing data and a disease genomics database. The institute provides research access through a research portal and offers customized genotyping tools including the Q-Chip microarray developed from genomic data. HDB-0110Emirati Reference Genome Programme
Department of Health, Abu Dhabi; Group 42 The Emirati Reference Genome Programme is a national genomics initiative launched in 2021 that collects biological samples and generates whole-genome sequencing data from Emirati citizens to create a reference genome representing the genetic diversity of the UAE population. The programme combines advanced sequencing technology and artificial intelligence to develop precision medicine applications tailored to Emirati genetics and support discovery of population-specific disease variants. HDB-0111Turkish Statistical Institute (TUIK) Health Statistics Portal
Turkish Statistical Institute (TUIK) The Turkish Statistical Institute maintains a comprehensive health statistics portal with aggregated data on Turkey's population health including mortality, morbidity, health expenditure, disability, and healthcare utilization statistics. The portal provides public access to downloadable datasets and indicators covering health and social protection statistics compiled from national health surveillance systems. HDB-0139DATASUS
Ministry of Health (Ministério da Saúde), Brazil DATASUS is Brazil's integrated health information system operated by the Department of Information Technology, providing data from the Unified Health System (SUS) including hospital admissions, outpatient services, mortality, births, notifiable diseases, and health establishments. The platform offers public access to health data through multiple tools including TABNET for analysis, RNDS for interoperable data sharing, and administrative dashboards covering all Brazilian municipalities and states. HDB-0140SISA
Ministry of Health (Ministerio de Salud de la Nación), Argentina SISA (Sistema Integrado de Información Sanitaria Argentino) is Argentina's integrated health information system that consolidates federal health registries including health establishments, licensed professionals, and real-time epidemiological surveillance data. The platform integrates multiple registries (REFES, REFEPS, SNVS 2.0) with a federal network architecture linking healthcare services, provincial agencies, and the national Ministry of Health. HDB-0141PAHO/EIH Open Data
Pan American Health Organization (PAHO/WHO) PAHO/EIH Open Data (formerly PLISA) is a regional health information platform providing over 140 health indicators covering countries and territories across the Americas since 1995. The platform includes disease incidence and mortality data, vaccination coverage, outbreak information, non-communicable disease indicators, mental health data, and environmental health determinants disaggregated by age, sex, and urban-rural distribution. HDB-0142Australian Institute of Health and Welfare (AIHW) Data Collections
Australian Institute of Health and Welfare AIHW maintains over 150 datasets covering health and welfare topics including perinatal health, disability, cancer, hospital activity, alcohol and drug use, and mortality collected from Australian healthcare services. Researchers access linked data through AIHW's data linkage services, which combine administrative health records with survey and registry data. HDB-0159N3C (National COVID Cohort Collaborative)
NIH NCATS (National Center for Advancing Translational Sciences) N3C is a centralized research platform that aggregates de-identified electronic health record data from over 90 institutions into a secure enclave, containing data on over 500,000 patients for COVID-19, Long COVID, and other disease research. Registered researchers can access the data to conduct collaborative studies on multiple disease domains with full data provenance documentation and strong privacy protections. HDB-0162Framingham Heart Study
Boston University School of Medicine, National Heart, Lung, and Blood Institute (NHLBI) A prospective cohort study that began in 1948 and now includes three generations with more than 15,000 participants and over 2 million biosamples collected over 78 years. Researchers access data through a formal application process via the Research Application Portal, with datasets available for cardiovascular disease, brain aging, metabolism, and genetics. HDB-0163ALSPAC (Avon Longitudinal Study of Parents and Children)
University of Bristol A birth cohort study that recruited over 14,000 pregnant women between 1991-1992 and has continuously monitored participants and their descendants. Researchers can access study data by submitting research proposals through the dedicated proposal portal, with datasets available from longitudinal assessments, cognitive testing, and a new cohort of grandchildren. HDB-0164SHARE (Survey of Health, Ageing and Retirement in Europe)
SHARE-ERIC (European Research Infrastructure Consortium) Europe's largest social science panel study collecting longitudinal data on health, biomarkers, employment, cognition, and economics across 28 participating countries. Researchers register as users and access data through the dedicated data portal (share-project.org/data), with approximately 690,000 interviews from 175,000 respondents supporting over 4,800 publications. HDB-0165ELSA (English Longitudinal Study of Ageing)
NatCen Social Research in partnership with University College London and Institute for Fiscal Studies A longitudinal study of English aging spanning 24 years across 11 waves of data collection involving 24,000+ participants. Researchers can download datasets directly from the website, with additional procedures for accessing genetic data, supported by comprehensive user guides and the contact point ELSAdata@natcen.ac.uk. HDB-0166Lifelines (Dutch Biobank and Cohort Study)
Lifelines Biobank, University Medical Center Groningen The Netherlands' largest biobank with over 167,000 participants providing health data and biological samples approximately every five years. Researchers submit data access applications through the dedicated biobank portal (lifelines-biobank.com), gaining access to well-organized questionnaires and datasets supporting over 750 scientific publications. HDB-0167Millennium Cohort Study (MCS)
Centre for Longitudinal Studies (CLS), University College London A birth cohort study following approximately 19,000 young people born in 2000-2002 across England, Scotland, Wales, and Northern Ireland through their life course. Researchers access data through CLS's data access portal with resources including documentation, a bibliography of 6,000+ publications, and training webinars, with a new consolidated core dataset released in July 2026. HDB-0168German National Cohort Study (NAKO)
German Federal Ministry of Education and Research and participating research institutions Germany's largest long-term study researching common diseases with participants undergoing ongoing examinations and health questionnaires in multiple phases. Researchers can access information through the NAKO TransferHub and contact research-responsible persons for collaboration, with resources supporting multiple research projects and an International NAKO Conference planned for 2026. HDB-0169WHO Data Platform
World Health Organization The WHO Data Platform (data.who.int) is a centralized interactive digital portal providing access to trusted global health data and statistics across thousands of health indicators. The platform offers browsable data by country and indicator, downloadable datasets, interactive visualizations tracking Triple Billion targets and health emergencies, and country-level health profiles. HDB-0170WHO Global Health Expenditure Database (National Health Accounts)
World Health Organization The WHO Global Health Expenditure Database provides comparable health spending data for 195 countries and territories since 2000, including breakdowns by funding sources, financing arrangements, health functions, and disease-specific expenditures. The database is updated annually and tracks capital investments and country-level health expenditure profiles. HDB-0171World Bank Health, Nutrition and Population Statistics
World Bank The World Bank provides comprehensive health, nutrition, and population statistics through its DataBank platform, offering over 50 health-related indicators including mortality rates, life expectancy, disease prevalence, immunization rates, and nutritional status measures. Data covers 195 countries with downloadable formats in CSV, XML, and Excel. HDB-0172UNAIDS AIDSinfo
UNAIDS UNAIDS AIDSinfo provides comprehensive HIV/AIDS epidemiological estimates, country-reported data on national AIDS responses, service coverage metrics, and financial resource tracking with over 85 indicators on HIV funding. The platform includes data on key populations, HIV-related policies and legal frameworks, and health inequalities in HIV progress. HDB-0173Global Fund Data Explorer
The Global Fund to Fight AIDS, Tuberculosis and Malaria The Global Fund Data Explorer provides public access to performance metrics and results data related to AIDS, tuberculosis, and malaria programs funded through the Global Fund. The platform enables stakeholders and the public to track grant performance, funding allocation, and programmatic outcomes. HDB-0174Gapminder Health Datasets
Gapminder Foundation Gapminder provides free interactive data visualization tools and datasets on global health, demographics, and development indicators sourced from the UN and other reliable international sources. The platform offers animated datasets and visualization tools to examine health trends and misconceptions about global health progress. HDB-0176MedMNIST
Jiancheng Yang et al. A collection of 18 standardized medical imaging datasets (12 2D and 6 3D) spanning multiple modalities including pathology, retinal imaging, breast ultrasound, and chest radiography. Datasets are pre-processed and curated for machine learning benchmarking with consistent train-validation-test splits. HDB-0177CAMELYON17
Diagnostic Image Analysis Group (DIAG), Radboud University Medical Center; Department of Pathology, Leiden University Medical Center An open-access histopathology dataset of 1,399 H&E-stained whole-slide images of sentinel lymph nodes from breast cancer patients, created for automated detection and classification of metastases. The dataset includes training and test sets with pixel-level annotations.Commercial data providers · 20
HDB-0013
Definitive Healthcare
Definitive Healthcare, LLC Commercial healthcare intelligence platform profiling US hospitals, health systems, physicians and payers, with affiliations, technology installs, claims-based volumes and executive contacts. Widely used by sales, marketing and strategy teams selling into healthcare. HDB-0014IQVIA Real-World Data
IQVIA Holdings Inc. The largest commercial healthcare data organization, offering longitudinal prescription, claims and EHR-derived real-world data across dozens of countries, plus analytics and consulting. The default enterprise choice for pharma commercial analytics and real-world evidence. HDB-0015Ampliz
Ampliz Healthcare-focused B2B contact and intelligence platform covering physicians, executives and facilities in the US, positioned for SMB and mid-market sales teams. Provides verified emails, direct dials and firmographic data with healthcare-specific segmentation. HDB-0016Komodo Health
Komodo Health Komodo Health operates Healthcare Map, a de-identified patient-level data platform combining over 1 trillion linked records from 330+ million patients, refreshed daily. Access requires enterprise contract through direct engagement with Komodo's sales and solutions team. HDB-0017Truveta
Truveta (collaborative health systems) Truveta Data provides daily-updated electronic health records and claims from 130+ million patients sourced directly from member health systems. Organizations access data through Truveta Evidence (trusted research environment) or Truveta Intelligence (query-based analysis tool), with expert-guided research services available. HDB-0018Optum Life Sciences (Market Clarity / Clinformatics)
Optum (UnitedHealth Group) Optum offers Market Clarity and Clinformatics Data Mart, de-identified repositories containing claims and clinical data from 80+ million unique patient lives with 20,000+ mapped clinical variables and over 1 billion prescriptions. Access is provided through licensed commercial agreements with Optum's sales organization. HDB-0019Merative MarketScan
Merative MarketScan is a proprietary United States claims database containing de-identified commercial and Medicaid insurance claims data supporting real-world evidence research. Academic institutions, pharmaceutical companies, and researchers access the data through Merative's workspace tools and research services, with specialized dissertation support available. HDB-0020HealthVerity
HealthVerity HealthVerity Marketplace aggregates de-identified healthcare data from 75+ sources covering 340+ million individuals, including claims, EHR, labs, pharmacy, consumer data, and social determinants of health. Organizations access datasets through the marketplace via custom licensing agreements with configurable data selection. HDB-0021Datavant
Datavant Datavant's Health Data Nexus consolidates de-identified clinical records, claims, and patient charts into unified longitudinal patient views for healthcare organizations. Payers and providers access structured and enriched data through the cloud-based platform for applications including risk adjustment, quality programs, and population health analytics. HDB-0022Clarify Health
Clarify Health Solutions Clarify Health's Atlas Platform provides underlying database covering 300+ million patient lives with longitudinal records, negotiated pricing rates, and machine learning-trained outcomes predictions. Health systems and payers access the data through the Meridian product for referral network optimization and care pathway analytics. HDB-0023Symphony Health (ICON)
Symphony Health (ICON plc / HealthVerity) Symphony Health's Integrated Dataverse provides de-identified medical, hospital, prescription, and demographic claims data linked at the patient level. The platform is now integrated into HealthVerity's broader ecosystem, offering access to specialty data products and analytics through the HealthVerity Marketplace. HDB-0024H1
H1 Inc. H1 is a global healthcare data and intelligence platform that aggregates information on millions of healthcare professionals, clinical trials, patient recruitment data, and prescriber insights across 6 continents. The platform serves pharmaceutical, payer, provider, and digital health organizations for sales, marketing, clinical development, and compliance workflows through subscription and licensing agreements. HDB-0025ZoomInfo Healthcare Solutions
ZoomInfo ZoomInfo is a B2B data and intelligence platform that maintains verified contact information and profiles for healthcare professionals, organizations, and decision-makers across the healthcare and life sciences sectors. The platform is used by pharmaceutical companies, medical device manufacturers, and healthcare service providers for lead generation, sales prospecting, and marketing through paid subscription. HDB-0026Veeva OpenData
Veeva Systems Veeva OpenData is a cloud-based reference data solution that contains verified information on healthcare professionals, healthcare organizations, and their affiliations across 100+ countries. The platform serves life sciences companies for commercial operations, CRM integration, and compliance workflows through direct provisioning, API integration, or data file delivery. HDB-0027Doximity
Doximity Inc. Doximity is the largest verified professional network of U.S. healthcare clinicians, operated by Doximity Inc., with over 3 million members including more than 85% of U.S. physicians plus nurses, pharmacists, and other healthcare professionals. The platform provides a professional directory, secure messaging, and clinical communication services; registration and use are free for verified U.S. healthcare professionals, with additional enterprise services available to healthcare organizations. HDB-0028CarePrecise
CarePrecise CarePrecise is a U.S. healthcare provider database containing information on more than 9.3 million providers, including physicians, dentists, pharmacists, nurses, hospitals, and clinics, compiled from CMS, federal, and other authoritative sources. The platform serves researchers, healthcare organizations, and commercial entities for workforce analysis and provider outreach through paid subscription packages with varying data comprehensiveness. HDB-0029Binleys / HSJ Information
HSJ Information (Inspirit acquisition 2024) Binleys, operated by HSJ Information (acquired by Inspirit in June 2024, formerly Wilmington Healthcare), is a UK healthcare intelligence and database service containing information on NHS professionals, healthcare organizations, and key decision-makers. The platform provides healthcare market intelligence, provider directories, and stakeholder engagement services for pharmaceutical companies and healthcare suppliers through licensing agreements. HDB-0030MD Select
Scott's Directories MD Select is a Canadian healthcare provider database operated by Scott's Directories containing verified information on more than 91,000 Canadian physicians, specialists, nurse practitioners, and healthcare organizations across all provinces. The platform serves pharmaceutical companies, medical device distributors, and healthcare sales teams for professional targeting and outreach through paid subscription with multiple pricing tiers. HDB-0031IQVIA OneKey
IQVIA IQVIA OneKey is a global healthcare professional and healthcare organization reference database containing information on approximately 25 million healthcare professionals and 6 million organizations across 117-118 countries. The platform serves the life sciences industry for commercial operations, sales, marketing, compliance, and analytics through commercial licensing agreements with data provisioned via direct access, API, or data files. HDB-0160TriNetX
TriNetX (private company) TriNetX operates a global federated real-world data network connecting approximately 14,200 healthcare sites across 20+ countries, with data on 309 million+ patient lives and 99 billion+ clinical data points. The platform serves pharmaceutical companies, healthcare providers, academic institutions, and researchers through a commercial subscription model for clinical trial design support, patient cohort identification, and real-world evidence research.Research databases · 69
HDB-0011
ClinicalTrials.gov
US National Library of Medicine The world's largest registry of clinical studies, spanning interventional trials and observational studies in 200+ countries, with protocols, eligibility criteria and posted results. Fully open with a modern REST API. HDB-0012PubMed / MEDLINE
US National Library of Medicine The primary index of biomedical literature: 37M+ citations with abstracts, MeSH indexing and links to full text. Free to search, with E-utilities APIs and annual baseline downloads for text mining. HDB-0032Embase
Elsevier Biomedical abstract and indexing database containing 44+ million records from 8,100+ journals, conference abstracts, and clinical trials dating from 1947 to present. Designed for systematic reviews, drug safety monitoring, and evidence-based research; accessed through paid institutional subscriptions or individual access options. HDB-0033Cochrane Library
Cochrane Curated collection of systematic reviews and meta-analyses synthesizing healthcare research, with all reviews available free after 12 months of publication. Supports evidence-based decision making through institutional subscriptions or free national provision access in 14+ countries. HDB-0034CINAHL
EBSCO Nursing and allied health literature index containing 1.25+ million records from 3,700+ journals, books, pamphlets, and dissertations. Provides CINAHL Subject Headings indexing with multiple product tiers offering varying levels of full-text access; accessed through institutional subscriptions or trials. HDB-0035Scopus
Elsevier Multidisciplinary abstract and citation database indexing 100+ million records from journals, books, conference proceedings, and preprints across all research disciplines. Features AI-powered analytics and discovery tools; accessed through institutional subscriptions with free preview mode available to individuals. HDB-0036Web of Science
Clarivate Citation-indexed research discovery platform covering 34,000+ journals with 278+ million records and 3.3+ billion citation links across 254 subject categories from 1864-present. Includes specialty databases for patents, dissertations, and preprints; accessed through institutional subscriptions only. HDB-0037APA PsycInfo
American Psychological Association Behavioral and social sciences database indexing 6+ million peer-reviewed records from 2,400+ journals, books, and dissertations in 30 languages from 50 countries. Updated twice weekly with coverage spanning 600 years; accessed through institutional licenses or individual subscriptions with free 30-day trials available. HDB-0039Trip Database
Trip (independent organization) Evidence-filtered medical search engine providing rapid access to clinical guidelines, systematic reviews, and primary research organized by research quality level. Offers free basic search and paid Trip Pro tier ($55/year individual or institutional licensing) with enhanced filtering and features. HDB-0082Kenya Medical Research Institute (KEMRI)
Kenya Medical Research Institute KEMRI is Kenya's leading health research institute established in 1979, conducting research on infectious diseases, parasitic diseases, epidemiology, and non-communicable diseases with state-of-the-art laboratories and extensive surveillance networks. The institute operates the Kilifi Health and Demographic Surveillance System (KHDSS), a Clinical Information Network spanning 25 hospitals, and maintains a biobank of over one million samples. HDB-0086Pan African Clinical Trials Registry (PACTR)
South African Medical Research Council (SAMRC) PACTR is the first WHO-recognized primary clinical trials registry in Africa, providing a free, open-access platform for registration of planned, ongoing, and completed clinical trials conducted across the continent. Established in 2007 and expanded to all disease conditions in 2009, the registry documents research patterns, funding, ethics, and locations of African-based trials. HDB-0090Japan MID-NET (Medical Information Database Network)
Pharmaceuticals and Medical Devices Agency (PMDA) A distributed medical information database established in 2018 aggregating electronic health records, insurance claims data, and diagnosis procedure combination information from healthcare institutions. The database supports real-world drug safety assessments and pharmacoepidemiological research with rigorous quality management standards. HDB-0092National Health Information Database / National Health Insurance Service Data
National Health Insurance Service (NHIS) A research data platform providing access to universal health insurance and health screening data covering over 50 million members of South Korea's national insurance system. The database includes eligibility data, health screening results, healthcare utilization records, prescriptions, and mortality information for the entire insured population. HDB-0093Health Insurance Review and Assessment Service Data (HIRA)
Health Insurance Review and Assessment Service A comprehensive claims repository containing healthcare reimbursement data from 98% of South Korea's population covering 56+ million patients (2015-2024 in standardized OMOP-CDM format). The database includes patient demographics, diagnoses, prescriptions, procedures, and surgical information supporting health services research. HDB-0095Clinical Data Analysis and Reporting System (CDARS)
Hospital Authority A comprehensive clinical data repository managed by Hong Kong's Hospital Authority covering over 11 million individuals (90%+ of population) with electronic health records from 43 hospitals and 122 outpatient clinics. The database contains diagnosis codes, medication records, procedures, laboratory results, and admission/discharge details supporting territory-wide epidemiological research. HDB-0097ICMR National Health Research Data Repository
Indian Council of Medical Research (ICMR) Centralized repository of anonymized high-quality health research datasets maintained by ICMR to support health research and innovation in India. Researchers must register and gain credentialed access to query datasets covering areas including gastrointestinal disorders, cerebral thrombosis, pesticide exposure, and infectious diseases. HDB-0098ICMR-NINE National Cancer Registry Programme
ICMR - National Institute of NCD Epidemiology (formerly NCDIR) National cancer registry program established in 1982, operating through 38 population-based cancer registries (PBCRs) and 269 hospital-based registries (HBCRs) covering approximately 11 percent of India's population. Registry data supports understanding cancer epidemiology, trends, and patterns across India; registries operate as part of broader NCD surveillance including diabetes, cardiovascular disease, and stroke. HDB-0102Singapore National Registry of Diseases Office (NRDO)
National Registry of Diseases Office (NRDO), Ministry of Health Singapore Government registry established under the National Registry of Diseases Act (2007) that maintains disease registries for major conditions including cancer (established 1968), myocardial infarction, renal failure, and stroke. Registries collect clinical and epidemiological data from healthcare institutions to track disease burden, trends, and outcomes. HDB-0105Bangladesh icddr,b Matlab Health and Demographic Surveillance System
icddr,b (International Centre for Diarrhoeal Disease Research, Bangladesh) The longest-running health and demographic surveillance system in the global South, operating since 1966 in Matlab, Bangladesh, tracking births, deaths, migrations, marriages, and divorces across a rural population of approximately 220,000. Matlab HDSS is a member of the INDEPTH network and serves as a research platform for health and demographic studies in developing country contexts. HDB-0107Clalit Research Institute
Clalit Health Services Clalit Research Institute maintains one of the world's richest integrated healthcare data repositories spanning over 30 years of fully digitized medical records from over 5.5 million members of Clalit Health Services. The institute provides access to longitudinal clinical data including diagnoses, hospitalizations, medications, laboratory results, and medical procedures for research applications. HDB-0108KSM Research and Innovation Center
Maccabi Healthcare Services KSM Research and Innovation Center maintains research access to Maccabi Healthcare Services' digital medical records covering 2.6 million members with 30 years of longitudinal data, plus Israel's largest biobank containing over 1 million samples. The center supports research through multiple divisions including innovation and big data analytics, epidemiology, and clinical research infrastructure. HDB-0109Golestan Cohort Study
Digestive Diseases Research Institute, Tehran University of Medical Sciences; National Cancer Institute (NCI) The Golestan Cohort Study is a population-based prospective cohort of approximately 50,000 adults aged 40-75 years in Golestan Province, Iran, established to investigate environmental and genetic risk factors for esophageal squamous cell carcinoma. Participants provided biological specimens (blood, hair, nails, urine) and detailed lifestyle and dietary questionnaire data, with ongoing annual follow-up monitoring. HDB-0112Danish National Patient Registry (Landspatientregisteret)
Danish Health Data Authority (Sundhedsdatastyrelsen) The Danish National Patient Registry contains comprehensive data on all hospital admissions, diagnoses coded in ICD-10, procedures coded in NOMESCO, and treatments in Denmark since 1977, covering both psychiatric and non-psychiatric inpatient care as well as emergency and outpatient specialty visits since 1995. Access for research is granted through application to the Danish Health Data Authority, which manages the registry as part of a broader health data system covering operations, diagnoses, births, causes of death, and medicines. HDB-0113Danish Civil Registration System (Det Centrale Personregister)
Ministry for Economic Affairs and the Interior (Denmark) The Danish CPR is a national register established in 1968 that maintains civil registration numbers, names, addresses, birth records, citizenship, church affiliation, parentage, and marital status for all Danish residents and Greenlandic citizens. Data is accessible to government agencies, businesses, organizations, and research institutions through data purchase arrangements, and individuals can request access to their own records. HDB-0114Statistics Denmark
Statistics Denmark (Danmarks Statistik) Statistics Denmark is the central authority on Danish statistics that provides researchers and analysts access to a wide range of pseudonymised microdata about Danish society through its digital platform (DDP App). Authorised institutions can submit project proposals for approval to access microdata for research and analysis purposes. HDB-0115Swedish National Patient Register (Nationella Patientregistret)
Socialstyrelsen (National Board of Health and Welfare, Sweden) The Swedish National Patient Register contains data on all inpatient hospital episodes since 1964 and outpatient specialist care visits, day surgery, and psychiatric care since 2001, including diagnoses, procedures, and administrative information. Access for research requires approval from the Swedish Ethical Review Authority following a formal application process. HDB-0116Swedish Prescribed Drug Register (Läkemedelsregistret)
Socialstyrelsen (National Board of Health and Welfare, Sweden) The Swedish Prescribed Drug Register contains records of all prescribed drugs dispensed in Swedish pharmacies since July 2005, with over 100 million entries annually, including patient age, sex, unique identifier, prescriber information, and dispensation details. The register is updated monthly and used by researchers, public agencies, journalists, and pharmaceutical industry representatives to study prescription patterns and drug safety. HDB-0117Norwegian Patient Registry (Norsk Pasientregister)
Norwegian Institute of Public Health (NIPH) The Norwegian Patient Registry contains information on all individuals who have received or are waiting to receive treatment in the specialist health service since 2008, including administrative, medical, and social information about healthcare episodes. Data access for research and other purposes requires submission of an application form to the Norwegian Institute of Public Health. HDB-0118Norwegian Prescribed Drug Registry (Legemiddelregisteret)
Norwegian Institute of Public Health (FHI) The Norwegian Prescribed Drug Registry is the successor to the Norwegian Prescription Database (NorPD) and contains records of all prescription drugs dispensed in Norwegian pharmacies since 2004, anonymised and pseudonymised for research use. Applications for research data access must be submitted to the Norwegian Institute of Public Health. HDB-0119FinnGen
FinnGen (public-private partnership) FinnGen is a large research project that has collected genome and longitudinal health data from over 500,000 Finnish biobank participants (approximately 10% of Finland's population), comprising more than 21.3 million genetic variants and over 2,750 health endpoints. Genome-wide association study (GWAS) results are publicly available for browsing and download, while complete dataset access is available to researchers at Finnish universities and university hospitals. HDB-0120Findata (Finnish Social and Health Data Permit Authority)
Findata (Finland) Findata is the Finnish authority that grants permits for the secondary use of health and social care data from multiple public and private data controllers, providing researchers access to pseudonymised registry data through a formal permit application process that typically requires 2-4 months for decision. The authority also pre-processes approved datasets and offers analytical tools for approved research uses. HDB-0121NORDCAN (Nordic Cancer Statistics Database)
Association of Nordic Cancer Registries (ANCR) and International Agency for Research on Cancer (IARC) NORDCAN is a web-based tool providing cancer statistics from Nordic countries (Denmark, Finland, Iceland, Norway, Sweden, Faroe Islands, and Greenland) including incidence, mortality, survival, and prevalence data spanning up to 70 years, with the earliest records from Denmark's National Cancer Registry established in 1943. Data is updated annually and presented as anonymous, privacy-protected statistics that can be compared across countries, regions, cancer types, and demographic groups. HDB-0122SNDS (Système National des Données de Santé)
Cnam (National Health Insurance Fund) The SNDS integrates health insurance reimbursement data (Sniiram), hospital activity records (PMSI), mortality data from Inserm, and disability support data, covering over 65 million individuals. Access is provided through the Health Data Hub to public organizations with permanent public service missions and to entities authorized by CNIL (France's data protection authority) for public interest research. HDB-0123Health Data Hub (Plateforme des données de santé)
GIP Santé (Public Interest Grouping), joint supervision of Ministry of Health, INRIA, INSERM, CNAM The Health Data Hub is France's national platform providing secure, unified access to pseudonymized health data from SNDS and other national health registries, serving researchers, innovators, and public health authorities. Data access requires project submission, CNIL authorization, and demonstration of public interest; over 230 projects have been approved through the platform. HDB-0124Forschungsdatenzentrum Gesundheit (FDZ Gesundheit)
BfArM (Federal Institute for Drugs and Medical Devices) The FDZ Gesundheit provides pseudonymized billing data from all legally insured Germans through virtual analysis workspaces, with plans to add electronic patient record (ePA) data as of late 2026. Researchers submit applications detailing their research purpose, and approved researchers access customized datasets within secure analysis environments without direct data transfer. HDB-0125German Centre for Cancer Registry Data (Zentrum für Krebsregisterdaten, ZfKD)
Robert Koch Institute (RKI) The ZfKD consolidates clinical and epidemiological cancer registry data from all 16 German federal states, providing incidence, prevalence, and survival statistics across 30+ cancer types with 25 years of historical data. Access is provided through an interactive database query interface and regular epidemiological publications; data through 2023 is available. HDB-0126PHARMO Database Network
PHARMO Institute (now part of Lumanity) The PHARMO Database Network comprises anonymized linked healthcare records from 14 million patients across 1,400 primary and secondary care providers in the Netherlands, representing 250 million person-years of data including GP records, hospital admissions, pharmacy records, and specialized registries. Researchers access PHARMO through coordinated studies via institutional partnerships; the database has contributed to over 1,000 published studies covering drug safety, effectiveness, and utilization. HDB-0127Nivel Primary Care Database (Nivel-PCD)
Nivel (Netherlands Institute for Health Services Research) The Nivel Primary Care Database combines routine electronic health record data from representative samples of Dutch primary care providers (GPs, physiotherapists, mental health professionals, dietitians) linked with pharmacy and secondary care data. Researchers access de-identified data through a formal application and approval process governed by steering committees with healthcare provider representatives. HDB-0128Healthdata.be / Health Data Agency (HDA)
Health Data Agency (formerly Sciensano) Healthdata.be is a Belgian platform that facilitates data exchange between healthcare professionals and researchers while protecting privacy and medical confidentiality, providing inventory of national health registries and secure data collection infrastructure. As of April 1, 2026, the platform is managed by the Health Data Agency; access procedures and registry management are coordinated through the updated platform at hda.belgium.be. HDB-0129Clinical Practice Research Datalink (CPRD)
Medicines and Healthcare products Regulatory Agency (MHRA) CPRD is a database of de-identified patient records from a network of UK general practices, covering approximately 60 million historical patients with 18 million currently registered, operated by the MHRA with support from the National Institute for Health and Care Research. Researchers access CPRD data for observational studies, clinical research, and surveillance through an application and review process conducted by the CPRD team. HDB-0130Hospital Episode Statistics (HES)
NHS England Digital HES is a national administrative database containing over 1 billion records of all NHS hospital admissions, outpatient appointments, and emergency department attendances in England, maintained by NHS England Digital. Researchers and organizations access HES data through data access request services for health services research, epidemiology, and policy evaluation. HDB-0131OpenSAFELY
Bennett Institute for Applied Data Science, University of Oxford, in partnership with NHS England, TPP, and Optum OpenSAFELY is a trusted research environment and open-source analytics platform that enables researchers to conduct statistical analyses on pseudonymized primary care records from across the UK without direct access to individual patient data. Approved researchers submit analysis code that executes on the platform, with only aggregated results returned to researchers, ensuring privacy protection while supporting 200+ active projects. HDB-0132SAIL Databank (Secure Anonymised Information Linkage)
Swansea University Medical School, funded by Health and Care Research Wales SAIL Databank is a trusted research environment containing anonymised health and social care records for approximately 5.5 million people in Wales, integrating data from NHS services, social care, educational records, and other administrative sources, with 25+ years of historical coverage and ISO 27001 certification. Researchers apply through a governance review process to access linked datasets for epidemiological, health services, and policy research. HDB-0133Scotland National Safe Haven (eDRIS)
Public Health Scotland, Electronic Data Research and Innovation Service (eDRIS), hosted by EPCC and University of Edinburgh The Scotland National Safe Haven is a trusted research environment providing secure access to sensitive NHS patient records for approved research projects, governed by Scotland's Public Benefit and Privacy Panel. Accredited researchers submit applications for access to linked NHS data for epidemiology, health services research, and public health surveillance. HDB-0134IQVIA Medical Research Data (IMRD)
IQVIA (previously known as The Health Improvement Network - THIN) IQVIA Medical Research Data is a longitudinal database of de-identified electronic health records from more than 6 million patients in England, derived from participating general practices using EMIS Health, Cegedim, and other clinical systems, and approved by the NHS Health Research Authority for medical research. Researchers access IMRD through application and data-sharing agreements for observational studies, pharmacovigilance, and comparative effectiveness research. HDB-0135Genomics England: 100,000 Genomes Project
Genomics England, funded by the UK Department of Health and Social Care The 100,000 Genomes Project is a genomic database containing whole genome sequences from approximately 85,000 NHS patients affected by rare diseases or cancer, established between 2013 and 2018, with data linked to NHS clinical records and participant consent status. Qualified researchers can access the project's genomic and phenotypic data through application for research on disease genetics, therapeutic development, and diagnostics. HDB-0136Our Future Health
Our Future Health, a public-private partnership involving NHS England, UK Research and Innovation, Wellcome Trust, and industry partners Our Future Health is a health cohort and biobank recruiting up to 5 million UK participants with linked health records, physical measurements, biosamples, and genetic data, designed to enable large-scale research on disease prevention and treatment. Qualified researchers access de-identified participant data through a secure trusted research environment for studies on disease patterns, risk factors, and health outcomes across diverse populations. HDB-0137UK Data Service
UK Data Service (part of Jisc), funded by the Economic and Social Research Council and supported by partner institutions The UK Data Service maintains the UK's largest collection of research data, including health surveys (Health Survey for England, Adult Psychiatric Morbidity Survey, National Child Measurement Programme) and social research datasets covering health outcomes, healthcare access, and population health. Researchers access health datasets for secondary analysis and educational purposes through online discovery tools with free or subscription-based registration. HDB-0138Hospital In-Patient Enquiry (HIPE)
Healthcare Pricing Office (HPO), Irish Department of Health HIPE is a national computerised health information system recording demographic, administrative, and clinical data on all inpatient and daycase discharges from publicly funded acute hospitals in Ireland, covering approximately 1.7 million discharges annually from 58 public acute hospitals. Researchers access HIPE data through the HPO for health services research, epidemiology, clinical audit, and policy planning using the HIPE Statistics Reporter or data requests. HDB-014345 and Up Study (The Sax Institute)
Sax Institute, in collaboration with Cancer Council NSW and NSW Ministry of Health Australia's largest ongoing longitudinal study of health and ageing enrolls over 250,000 participants aged 45+ and tracks them across 15+ years of follow-up data. The study provides access to survey questionnaires, physical assessments, biospecimens (blood, genetic data), and linked data from Medicare, pharmaceutical records, hospital episodes, and cancer registries. HDB-0144ICES (formerly Institute for Clinical Evaluative Sciences) - Ontario
ICES ICES is an independent health data analytics institute housing comprehensive Ontario health system data collected since 1992 from healthcare interactions including hospital, primary care, and social service records. Researchers access linked administrative health data for studies in cancer, cardiovascular disease, mental health, and health equity through formal research agreements. HDB-0145Canadian Institute for Health Information (CIHI)
Canadian Institute for Health Information CIHI is an independent, not-for-profit organization providing standardized health system data and indicators for Canadian provinces and territories, including hospital, pharmaceutical, and health services data. The institute publishes reports, dashboards, and data tables through its indicator library and provides secure analytical tools (Insight+) for deeper analysis of health system performance. HDB-0146Canadian Longitudinal Study on Aging (CLSA)
Canadian Longitudinal Study on Aging CLSA is a national longitudinal research platform following 51,000+ participants aged 45-85 across 20 years to examine biological, medical, psychological, social, and economic aspects of aging, disability, and disease. The study provides researchers and international collaborators access to questionnaire data, physical assessments, biomarkers, genomics, metabolomics, imaging, and linked health outcome data including COVID-19 serology. HDB-0147WHO ICTRP (International Clinical Trials Registry Platform)
World Health Organization ICTRP is a WHO-operated search portal that aggregates clinical trial registration data from 21 primary registries across multiple countries and regions, including trials in all phases and across all therapeutic areas. The platform provides a unified search interface for finding trial information while linking to the original records maintained by contributing registries. HDB-0148EudraCT
European Medicines Agency (EMA) EudraCT is the European Union's database for interventional clinical trials on medicinal products conducted in the EU/EEA from May 2004 through January 2025 under Directive 2001/20/EC. As of January 31, 2025, new EU/EEA trials must transition to the newer Clinical Trials Information System (CTIS), though EudraCT continues to accept results submissions and third-country trial files. HDB-0149EU Clinical Trials Register
European Medicines Agency (EMA) The EU Clinical Trials Register provides public access to information on trials previously registered in EudraCT, including trial protocols and results data. It serves as the historical and transitional repository for EU/EEA trial information while ongoing trials are registered through the newer Clinical Trials Information System. HDB-0150ISRCTN Registry
BioMed Central / Springer Nature ISRCTN is the UK's only WHO-recognised primary clinical study registry, accepting registration of interventional and non-interventional studies at any stage (proposed, ongoing, or completed). All records are freely searchable and openly accessible, supporting UK transparency requirements effective April 2026 that mandate prospective registration and results publication within 12 months. HDB-0151CTRI (Clinical Trials Registry - India)
Indian Council of Medical Research, National Institute for Research in Digital Health CTRI is a free public registry for registration of all clinical trials conducted in India, mandatory since 2009 and accessible through both the CTRI website and WHO's ICTRP. The registry contains over 115,000 trials including drug trials, surgical procedures, device studies, behavioral interventions, and AYUSH research, all prospectively registered before participant enrollment. HDB-0152ChiCTR (Chinese Clinical Trial Registry)
Chinese Clinical Trial Registry Center ChiCTR is a WHO-recognised primary registry for clinical trials conducted in China, offering searchable access organized by geographic location, disease codes, funding source, recruitment status, and ethical committee approval. The platform includes a user account system for researchers to register and manage trials, with free registration and comprehensive methodology resources available. HDB-0153ReBEC (Brazilian Clinical Trials Registry)
Ministry of Health / Pan American Health Organization / Oswaldo Cruz Foundation ReBEC is a free-access virtual platform for registration of experimental and non-experimental studies conducted in Brazil, hosted by a collaborative effort of government and international health organizations. The registry contains over 18,700 trials including 5,162 actively recruiting studies, with multilingual support (Portuguese and English) and dedicated user assistance available 24/7. HDB-0154OHDSI
OHDSI Collaborative OHDSI is an international open-science collaborative that standardizes and coordinates observational health databases through the OMOP Common Data Model for large-scale analytics and real-world evidence generation. The network operates through a decentralized community of researchers and data partners who can conduct collaborative studies using harmonized health data while maintaining local data governance. HDB-0155EHDEN
EHDEN Foundation EHDEN operates a federated network of over 100 healthcare data sources across Europe standardized to the OMOP Common Data Model to generate reliable real-world evidence for medicines and health research. The foundation provides infrastructure, training, and research coordination services to enable collaborative studies while maintaining data governance and institutional autonomy. HDB-0156DARWIN EU
European Medicines Agency (EMA) DARWIN EU is the EMA's Data Analysis and Real World Interrogation Network, established to provide timely evidence on the safety and effectiveness of medicines using real-world healthcare data from approximately 40 data partners across the EU. The network conducts regulatory studies to support medicines oversight and authorization decisions throughout a medicine's lifecycle. HDB-0157FDA Sentinel Initiative
FDA (US Food and Drug Administration) The FDA Sentinel Initiative is a distributed system for evaluating the safety and performance of medical products using real-world data from insurance claims, electronic health records, and patient reports covering approximately 138.7 million members. Data remain with their sources (insurance companies, EHR systems, etc.) and are analyzed through a decentralized model that preserves privacy and data security. HDB-0158PCORnet
PCORI (Patient-Centered Outcomes Research Institute) PCORnet is a national research network funded by PCORI that aggregates health data from diverse clinical settings to enable patient-centered comparative effectiveness research and fast, trustworthy evidence generation. The network provides researchers and healthcare organizations with access to comprehensive clinical data and research infrastructure while incorporating patient perspectives in research design. HDB-0161HDR UK Innovation Gateway
HDR UK (Health Data Research UK) HDR UK Gateway is a centralized platform that enables researchers to discover, access, and link UK health datasets for research, including integration with the Cohort Discovery Service for secure exploration of patient cohorts across multiple datasets. The platform streamlines the researcher journey from feasibility assessment through data access agreements with NHS trusts, academic institutions, and other data holders. HDB-0175Grand Challenge
Diagnostic Image Analysis Group (DIAG), Radboud University Medical Center A platform hosting 419+ open medical imaging challenges and datasets across diverse imaging modalities and anatomical sites. Participants can submit algorithms, access benchmark datasets, and benchmark their models against peer submissions in real time. HDB-0178National Health Insurance Research Database (NHIRD, Taiwan)
Health and Welfare Data Science Center, Ministry of Health and Welfare (Taiwan) De-identified claims data from Taiwan's single-payer National Health Insurance scheme, which covers essentially the whole population, including diagnoses, prescriptions, procedures and examinations. Access is granted through the Ministry of Health and Welfare's Health and Welfare Data Science Center, where approved researchers analyse the data on-site or in a controlled environment rather than downloading it. HDB-0179NDB — National Database of Health Insurance Claims (Japan)
Ministry of Health, Labour and Welfare (Japan) Japan's national repository of anonymized health insurance claims and Specific Health Checkup records, collected under the Ministry of Health, Labour and Welfare with data from April 2009 onward. Researchers apply to MHLW for provision of the anonymized data, which is used for health policy analysis and pharmacoepidemiology; MHLW also publishes aggregated NDB open data tables.Terminology & standards · 8
HDB-0072